about the fundraiser
Sean's team at The Johns Hopkins Wilmer Eye Institute includes retina specialist, Dr. Handa and ophthalmologist, Dr. Repka. They both work closely with Dr. Akrit Sodhi, who is responsible for researching a cure for Coats Disease. Before our family started the fundraiser, The Wilmer Eye Institute was not researching the disease.
We founded the fundraiser shortly after our son was diagnosed in 2014. In the ten years since the diagnosis of our cousin's son, treatment barely changed. We wanted to change that. Our hope is to make a difference for children with Coats Disease and assist a major eye institute as it works towards a cure.
Since 2014, we have hosted a large party at our home in Clarksville, Maryland and most recently at The Warehouse District in Columbia, MD. Through the generous donations of our community—food trucks, music, photography, supplies, raffle items, etc.—we have been able to donate 100% of all donations directly to The Wilmer Eye Institute and the research of Dr. Akrit Sodhi. All $275,000+ of it! This year, 2024, our event will be located at Hysteria Brewing Co. & Lost Ark Distilling Co. We will be changing things up a bit, a bigger Cornhole Tournament, Artists, Music, and more! Stay tuned for details!
We can't wait to host the 10th Annual Curing Coats Fundraiser next JUNE and we hope to see you there. If you are interested in donating to this cause, please visit the Wilmer Eye Institute's donation page.
You may also donate by purchasing a t-shirt or hat at the event or by emailing us to place an order: curingcoatsfundraiser@gmail.com
